Le syndrome de Gougerot-Sjögren est une maladie auto-immune systémique qui se caractérise par l’atteinte de certaines glandes notamment lacrymales et salivaires avec une diminution des sécrétions de larmes et de salive réalisant un syndrome sec. Mais, le syndrome de Gougerot-Sjögren peut aussi avoir des manifestations systémiques pouvant toucher différents organes.
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\n\nOr les évolutions et fluctuations de cette maladie peuvent être nombreuses et l’évaluation précise de celles-ci -notamment par des scores validés- est importante pour une meilleure prise en charge et un suivi individualisé des patients.
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\n\nAfin d’aider les patients et leurs médecins à évaluer l’évolution de la maladie l’organisation européenne EULAR (European League Against Rheumatism) a coordonné la création de scores scientifiquement validés pouvant être utilisés lors du suivi médical régulier.
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\n\nCes scores ( ESSPRI et ESSDAI ) sont mis à disposition des patients et médecins, gratuitement et en toute confidentialité, sur notre plateforme dans le cadre de ce projet soutenu par l’EULAR.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-joyi7jjy":{"type":"Anchor","id":"dataItem-joyi7jjy","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"name":"DANSK","compId":"comp-joyi7jjx"},"dataItem-joyi7jks":{"type":"Anchor","id":"dataItem-joyi7jks","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"name":"Ελληνικά","compId":"comp-joyi7jkr"},"dataItem-joyi7jlq1":{"type":"Anchor","id":"dataItem-joyi7jlq1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"name":"Italiano","compId":"comp-joyi7jlq"},"dataItem-joyi7jon":{"type":"Anchor","id":"dataItem-joyi7jon","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"name":"Nederlands","compId":"comp-joyi7jom"},"dataItem-joyi7jq3":{"type":"Anchor","id":"dataItem-joyi7jq3","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"name":"Partenaires","compId":"comp-joyi7jq2"},"dataItem-joyi7jr4":{"type":"StyledText","id":"dataItem-joyi7jr4","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"European League Agaisnt Rheumatism (EULAR)
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":["#textLink_jpo8tv3p"]},"dataItem-jpo60axw":{"type":"StyledText","id":"dataItem-jpo60axw","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Patient : évaluez l’activité de votre syndrome de Gougerot-Sjögren avec ce score dédié aux patients.
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Vous pourrez évaluer votre score ESSPRI par exemple tous les 15 jours et imprimer le résultat chaque fois, pour les montrer à votre médecin lors de votre prochaine consultation.
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\n\nMédecin : évaluez l’activité du syndrome de Gougerot-Sjögren de votre patient en complément du score ESSPRI
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\n\nCe projet est réalisé avec le soutien institutionnel de l’EULAR et le conseil scientifique du groupe EULAR Sjogren’s task force coordonnée par le Pr SEROR, CHU Kremlin Bicêtre, Paris.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo6af5t":{"type":"LinkableButton","id":"dataItem-jpo6af5t","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"Score ESSPRI","link":"#dataItem-jpo6cnck"},"dataItem-jpo6btt3":{"type":"LinkableButton","id":"dataItem-jpo6btt3","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"Score ESSDAI","link":"#dataItem-jpo6d6gp"},"dataItem-jpo6cnck":{"type":"ExternalLink","id":"dataItem-jpo6cnck","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/esspri/fr/","target":"_blank"},"dataItem-jpo6d6gp":{"type":"ExternalLink","id":"dataItem-jpo6d6gp","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/essdai/fr/","target":"_blank"},"dataItem-jpo6dhn1":{"type":"StyledText","id":"dataItem-jpo6dhn1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Sjogren’s syndrome is a systemic autoimmune disease characterized by the involvement of some glands including lacrymal and salivary glands with a decrease of tears and saliva production causing dryness. But, Sjögren’s syndrome may also have systemic manifestations that can affect various organs.
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\n\nBut evolutions and changes could be frequent in the course of the disease and their accurate assessment -especially using validated scores- is important for better and individualized patient care.
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\n\nTo help patients and their physicians to assess the activity of the disease the European organization EULAR (European League Against Rheumatism) coordinated the creation of scientifically validated scores that can be used during the regular medical follow-up.
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\n\nThese scores ( ESSPRI and ESSDAI ) are now available for patients and physicians, for free and with confidentiality, on our platform as part of this project supported by EULAR.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo6dv8b":{"type":"StyledText","id":"dataItem-jpo6dv8b","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Patient : Evaluate the activity of your Sjogren’s syndrome with this score for patients.
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You can now record your ESSPRI score eg every 15 days, and print results every time, to show them to your doctor at your next appointment.
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\n\nPhysician : Additionally, evaluate the intensity of Sjogren’s syndrome symptoms of your patient with the ESSDAI score
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\n\nThis project is realized with the institutional support of EULAR and the Scientific Council of Sjogren’s group EULAR task force coordinated by Pr SEROR, Kremlin Bicetre Hospital, Paris.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo6kawo":{"type":"LinkableButton","id":"dataItem-jpo6kawo","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"ESSPRI Score","link":"#dataItem-jpo6kawo1"},"dataItem-jpo6kawo1":{"type":"ExternalLink","id":"dataItem-jpo6kawo1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/esspri/en/","target":"_blank"},"dataItem-jpo6mryl":{"type":"LinkableButton","id":"dataItem-jpo6mryl","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"ESSDAI Score","link":"#dataItem-jpo6mryl1"},"dataItem-jpo6mryl1":{"type":"ExternalLink","id":"dataItem-jpo6mryl1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/essdai/en/","target":"_blank"},"dataItem-jpo6q299":{"type":"StyledText","id":"dataItem-jpo6q299","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Sjögrens syndrom er en systemisk autoimmun sygdom karakteriseret ved inddragelse af nogle kirtler, herunder lacrymal og spytkirtler med et fald i tårer og spyt produktion forårsager tørhed. Men kan Sjogrens syndrom også have systemiske manifestationer, der kan påvirke forskellige organer.
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\n\nMen udviklingstendenser og ændringer kan være hyppige i løbet af sygdommen og deres nøjagtig vurdering-især ved hjælp af validerede scores- er vigtig for bedre og individualiseret patientbehandling.
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\n\nFor at hjælpe patienter og deres læger til at vurdere aktiviteten af sygdommen den europæiske organisation EULAR (European League Against Rheumatism) koordineret skabelse af videnskabeligt validerede scores, der kan bruges under regelmæssig medicinsk opfølgning.
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\n\nDisse scoringer ( ESSPRI og ESSDAI ) er nu tilgængelige for patienter og læger, gratis og med fortrolighed, på vores platform som en del af dette projekt støttet af EULAR.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo6q29z":{"type":"StyledText","id":"dataItem-jpo6q29z","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Patienter : Vurdere aktivitet din Sjögrens syndrom med denne score for patienter.
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You can now record your ESSPRI score eg every 15 days, and print results every time, to show them to your doctor at your next appointment.
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\n\nLæge : Derudover vurderer intensiteten af Sjögrens syndrom symptomer din patient med ESSDAI score
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\n\nDette projekt er realiseret med den institutionelle støtte fra EULAR og Det Videnskabelige Råd Sjögrens gruppe EULAR taskforce koordineres af Dr. SEROR, Kremlin Bicetre Hospital, Paris.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo6q2af":{"type":"LinkableButton","id":"dataItem-jpo6q2af","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"ESSPRI Score","link":"#dataItem-jpo6q2af1"},"dataItem-jpo6q2af1":{"type":"ExternalLink","id":"dataItem-jpo6q2af1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/esspri/da/","target":"_blank"},"dataItem-jpo6q2au":{"type":"LinkableButton","id":"dataItem-jpo6q2au","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"ESSDAI Score","link":"#dataItem-jpo6q2av"},"dataItem-jpo6q2av":{"type":"ExternalLink","id":"dataItem-jpo6q2av","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/essdai/en/","target":"_blank"},"dataItem-jpo7ax48":{"type":"LinkableButton","id":"dataItem-jpo7ax48","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"ESSPRI Punkten","link":"#dataItem-jpo7ax49"},"dataItem-jpo7ax49":{"type":"ExternalLink","id":"dataItem-jpo7ax49","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/esspri/de/","target":"_blank"},"dataItem-jpo7ax4i":{"type":"LinkableButton","id":"dataItem-jpo7ax4i","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"ESSDAI Punkten","link":"#dataItem-jpo7ax4j"},"dataItem-jpo7ax4j":{"type":"ExternalLink","id":"dataItem-jpo7ax4j","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/essdai/en/","target":"_blank"},"dataItem-jpo7ax4s":{"type":"StyledText","id":"dataItem-jpo7ax4s","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Patienten : Bewerten Sie die Aktivität Ihres Sjögren-Syndrom mit dieser Punktzahl für die Patienten.
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können Sie jetzt Ihre ESSPRI punkten jedes Mal zB alle 15 Tage, und die Druckergebnisse, sie zu Ihrem Arzt bei Ihrem nächsten Termin zu zeigen.
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\n\nArtz : Darüber hinaus bewerten die Intensität des Sjögren-Syndrom Symptome Ihrer Patienten mit dem ESSDAI Punktzahl
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\n\nDieses Projekt wird mit der institutionellen Unterstützung von EULAR und dem wissenschaftlichen Rat des Sjögren-Gruppe EULAR Task Force koordiniert von Dr. SEROR, Kremlin Bicêtre, Paris realisiert.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo7ax52":{"type":"StyledText","id":"dataItem-jpo7ax52","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Sjögren-Syndrom ist eine systemische durch die Beteiligung einiger Drüsen Autoimmunkrankheit, einschließlich lacrymal und Speicheldrüsen mit einem Rückgang von Tränen und Speichelproduktion verursacht Trockenheit. Aber kann das Sjögren-Syndrom haben auch systemischen Manifestationen, die verschiedene Organe betreffen können.
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\n\nAber Entwicklungen und Veränderungen könnten häufig sein -vor allem im Verlauf der Krankheit und ihre genaue Beurteilung validiert scores- Verwendung ist wichtig für eine bessere und individuelle Patientenversorgung.
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\n\nPatienten und ihre Ärzte, um die Aktivität der Erkrankung die europäische Organisation EULAR (European League Against Rheumatism) koordiniert das zu beurteilen Erstellung von wissenschaftlich validierten Scores, die während der regulären medizinischen Follow-up verwendet werden können.
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\n\nDiese Werte ( ESSPRI und ESSDAI ) sind für Patienten und Ärzte jetzt zur Verfügung, kostenlos und vertraulich, von EULAR unterstützt auf unserer Plattform dieses Projekt im Rahmen.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo7bdf9":{"type":"StyledText","id":"dataItem-jpo7bdf9","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Οι ασθενείς : Αξιολογεί τη δραστηριότητα του συνδρόμου Sjogren σας με αυτό το σκορ για τους ασθενείς.
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Τώρα μπορείτε να καταγράψετε σας ESSPRI βαθμολογίας π.χ. κάθε 15 ημέρες, και τα αποτελέσματα εκτύπωσης κάθε φορά, για να τους δείξουμε με το γιατρό σας στο επόμενο ραντεβού σας.
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\n\nΙατρός : Επιπλέον, αξιολογεί την ένταση των συμπτωμάτων του συνδρόμου του Sjogren των ασθενών σας με το
\nESSDAI σκοράρει .
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\n\nΤο έργο αυτό πραγματοποιείται με τη θεσμική υποστήριξη του EULAR και του Επιστημονικού Συμβουλίου του ομίλου EULAR ομάδας εργασίας του Sjogren συντονίζεται από τον Δρ SEROR, Κρεμλίνο Bicetre Νοσοκομείο, στο Παρίσι.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo7om9l1":{"type":"StyledText","id":"dataItem-jpo7om9l1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"σύνδρομο Sjogren είναι μια συστημική αυτοάνοση νόσος που χαρακτηρίζεται από την ανάμειξη ορισμένων αδένων, συμπεριλαμβανομένων των δακρύων και σιελογόνοι αδένες με μείωση των δακρύων και της παραγωγής σιέλου προκαλεί ξηρότητα. Όμως, σύνδρομο Sjögren μπορεί επίσης να έχει συστηματικές εκδηλώσεις που μπορούν να επηρεάσουν διάφορα όργανα.
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\n\nΑλλά εξελίξεις και οι αλλαγές θα μπορούσαν να είναι συχνές στην πορεία της νόσου και την ακριβή εκτίμηση τους -ιδιαίτερα με τη χρήση επικυρωμένων scores- είναι σημαντική για την καλύτερη και εξατομικευμένη φροντίδα των ασθενών.
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\n\nΓια να βοηθήσει τους ασθενείς και τους γιατρούς τους για την αξιολόγηση της δραστηριότητας της νόσου η ευρωπαϊκή οργάνωση EULAR (European League Against Rheumatism) συντονίζεται η δημιουργία των επιστημονικά επικυρωμένων σκορ που μπορεί να χρησιμοποιηθεί κατά τη διάρκεια της τακτικής ιατρικής παρακολούθησης.
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\n\nΑυτά τα αποτελέσματα ( ESSPRI και ESSDAI ) είναι τώρα διαθέσιμο για τους ασθενείς και τους γιατρούς, δωρεάν και με εμπιστευτικότητα, στην πλατφόρμα μας, ως μέρος αυτού του έργου υποστηρίζεται από EULAR.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo7om9p1":{"type":"StyledText","id":"dataItem-jpo7om9p1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"El síndrome de Sjögren es una enfermedad autoinmune sistémica caracterizada por la implicación de algunas glándulas lagrimales y salivales incluyendo glándulas con una disminución de la producción de saliva y lágrimas que causan sequedad. Sin embargo, el síndrome de Sjögren también puede tener manifestaciones sistémicas que pueden afectar a varios órganos.
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\n\nPero evoluciones y cambios podrían ser frecuente en el curso de la enfermedad y su evaluación precisa -especialmente usando scores- validado es importante para una mejor e individualizada atención al paciente.
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\n\nPara ayudar a los pacientes y sus médicos para evaluar la actividad de la enfermedad de la organización europea EULAR (European League Against Rheumatism) coordinó la creación de partituras validados científicamente que pueden ser utilizados durante los procedimientos ordinario seguimiento médico.
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\n\nEstas puntuaciones ( ESSPRI y ESSDAI ) Están ahora disponibles para los pacientes y los médicos, de forma gratuita y con la confidencialidad, en nuestra plataforma como parte de este proyecto con el apoyo de la EULAR.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo7oma2":{"type":"StyledText","id":"dataItem-jpo7oma2","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Los Patientes : Evaluar la actividad del síndrome de su Sjogren con esta puntuación para los pacientes.
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Ahora puede registrar su puntuación ESSPRI por ejemplo, cada 15 días, y los resultados de impresión cada vez, para mostrar a su médico en su próxima cita.
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\n\nMédico : Además, evaluar la intensidad de los síntomas del síndrome de Sjogren de su paciente con el ESSDAI puntuación.
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Este proyecto se realiza con el apoyo institucional de EULAR y el Consejo Científico del grupo de grupo de trabajo EULAR de Sjogren coordinado por el Dr. SEROR, Hospital Kremlin Bicetre, París.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo7oma71":{"type":"LinkableButton","id":"dataItem-jpo7oma71","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"Puntación ESSDAI","link":"#dataItem-jpo7oma8"},"dataItem-jpo7oma8":{"type":"ExternalLink","id":"dataItem-jpo7oma8","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/essdai/en/","target":"_blank"},"dataItem-jpo7omac1":{"type":"LinkableButton","id":"dataItem-jpo7omac1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"Puntación ESSPRI","link":"#dataItem-jpo7omac2"},"dataItem-jpo7omac2":{"type":"ExternalLink","id":"dataItem-jpo7omac2","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/esspri/de/","target":"_blank"},"dataItem-jpo7omaj1":{"type":"StyledText","id":"dataItem-jpo7omaj1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"I pazienti : I pazienti possono valutare l’attività della loro malattia (sindrome di Sjogren) calcolando il punteggio del questionario denominato ESSPRI.
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E’ possibile registrare il punteggio ESSPRI d esempio ogni 15 giorni, e stampare i risultati per mostrarli al medico al successivo appuntamento.
\n\nMedico : I medici possono valutare le variazioni del quadro clinico del paziente mediante il punteggio ESSDAI punteggio.
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Questo progetto è stato realizzato con il supporto istituzionale di EULAR dal comitato scientifico del gruppo denominato ‘EULAR task force for Sjogren’s syndrome’ coordinato dalla Dott.ssa SEROR, Kremlin Bicêtre, Parigi.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo89cpk":{"type":"StyledText","id":"dataItem-jpo89cpk","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"La sindrome di Sjogren è una malattia autoimmune sistemica caratterizzata dal coinvolgimento delle ghiandole lacrimali salivari, con conseguente diminuita produzione di lacrime saliva che causano secchezza degli occhi e della bocca.La sindrome di Sjögren può anche avere manifestazioni sistemiche che possono colpire vari organi.
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\n\nEvoluzioni e cambiamenti del decorso della malattia possono essere frequenti e quindi è importante fare una valutazione accurata del quadro clinico, in particolare utilizzando score convalidati, al fine di individuare la migliore terapia per ogni singolo paziente
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\n\nPer aiutare i pazienti e i loro medici nella valutazione dell’attività della malattia, l’organizzazione europea EULAR (European League Against Rheumatism) cha coordinato la creazione di punteggi scientificamente validati da utilizzare per il monitoraggio della malattia.
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\n\nQuesti punteggi ( ESSPRI e ESSDAI ) sono ora disponibili per i pazienti e i medici gratuitamente e nel rispetto della privacy del paziente, sulla nostra piattaforma come parte integrante di questo progetto sostenuto da EULAR.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo89cpn1":{"type":"StyledText","id":"dataItem-jpo89cpn1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"シェーグレン症候群は、涙腺と唾液腺を含む外分泌腺の障害を特徴とする全身性の自己免疫疾患です。涙や唾液の減少により乾燥症状が引き起こされますが、さまざまな臓器障害を有する全身症状を呈することがあります。
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\n\nしかし、病気の進展や病状の変化はさまざまであるため、それらの正確な評価 – 特に検証済みの活動性スコアによる評価 – は、より良い患者ケアと患者個人の経過観察のために重要です。
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\n\n疾患活動性評価を患者と医師が行いやすくするために、 EULAR ヨーロッパリウマチ学会）が中心となって科学的に検証された活動性スコアが作成され、日常診療で使用できるようになりました。
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\n\nこれらの活動性スコア ( ESSPRI と ESSDAI ) は現在、EULAR支援事業の一環であるこちらのホームページから自由にご利用できます。患者にも医師にも機密が保持された状態でご利用可能です。
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo89cq0":{"type":"StyledText","id":"dataItem-jpo89cq0","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"患者 : 患者のための活動性スコアで、あなたのシェーグレン症候群の疾患活動性を評価します。
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あなたは、たとえば15日ごとにご自身の ESSPRI
\nスコアを記録して、毎回結果を印刷できます。そして、次の診察日にその結果を主治医に見せることができます。
\n\n医師 : 主治医はシェーグレン症候群の疾患活動性（ESSDAI)の評価を行い、患者の ESSPRI
\nの点数と合わせて完全な評価にします。
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\n\nこのプロジェクトは、EULARおよびクレムリンビセートル病院（パリ）のSeror博士が中心となったEULARタスクフォース科学委員会の支援を受けて実現しています。
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo89cq41":{"type":"LinkableButton","id":"dataItem-jpo89cq41","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"ESSDAI スコア","link":"#dataItem-jpo89cq42"},"dataItem-jpo89cq42":{"type":"ExternalLink","id":"dataItem-jpo89cq42","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/essdai/en/","target":"_blank"},"dataItem-jpo89cqa":{"type":"LinkableButton","id":"dataItem-jpo89cqa","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"ESSPRI スコア","link":"#dataItem-jpo89cqa1"},"dataItem-jpo89cqa1":{"type":"ExternalLink","id":"dataItem-jpo89cqa1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/esspri/ja/","target":"_blank"},"dataItem-jpo89cqg":{"type":"StyledText","id":"dataItem-jpo89cqg","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Patiënten : Evalueer de activiteit van het syndroom van uw Sjogren met deze score voor patiënten.
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U kunt nu neem uw ESSPRI score bijvoorbeeld om de 15 dagen, en af te drukken resultaten elke keer, om te laten zien aan uw arts bij uw volgende afspraak.
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\n\nArts : Bovendien, de evaluatie van de intensiteit van het syndroom van Sjögren symptomen van uw patiënt met de ESSDAI score.
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\n\nDit project wordt gerealiseerd met de institutionele steun van EULAR en de Wetenschappelijke Raad van Sjögren groep EULAR task force gecoördineerd door Pr SEROR, Kremlin Bicetre Hospital, Parijs.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo94ump":{"type":"StyledText","id":"dataItem-jpo94ump","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Syndroom van Sjögren is een auto-immuunziekte gekenmerkt door de betrokkenheid van sommige klieren waaronder traan- en speekselklieren met een vermindering van scheuren en speekselproductie veroorzaken droogheid. Maar kan Sjögren-syndroom ook systemische manifestaties die invloed hebben op diverse organen.
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\n\nMaar evoluties en veranderingen kunnen vaak in de loop van de ziekte en het nauwkeurige beoordeling – vooral met gevalideerde scores – is belangrijk voor betere en geïndividualiseerde patiëntenzorg.
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\n\nOm u te helpen de patiënten en hun artsen om de activiteit van de ziekte te beoordelen de Europese organisatie EULAR (European League Against Rheumatism) coördineerde de creatie van wetenschappelijk gevalideerde scores die gebruikt kunnen worden tijdens het reguliere medische follow-up.
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\n\nDeze scores ( ESSPRI en ESSDAI ) zijn nu beschikbaar voor patiënten en artsen, gratis en vertrouwelijk, op ons platform in het kader van dit project wordt ondersteund door EULAR.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo94umt":{"type":"StyledText","id":"dataItem-jpo94umt","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Sjögrens syndrom er en systemisk autoimmun sykdom som typisk kan affisere spytt- og tårekjertler. Dette kan gi redusert spytt- og tåreproduksjon og tørrhetsplager. Sjögrens syndrom kan også ha systemiske manifestasjoner som kan påvirke ulike organer.
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\n\nSykdommen kan endre seg over tid, og en nøye vurdering og kartlegging, særlig ved bruk av et validert scoringssystem, er viktig for bedret og individualisert pasientbehandling.
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\n\nFor å hjelpe pasienter og deres leger med å vurdere aktivitet i sykdommen har den europeiske organisasjonen EULAR (European League Against Rheumatism) koordinert etableringen av et vitenskapelig scorings system som kan brukes ved regelmessig medisinsk oppfølging.
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\n\nDisse scorene ( ESSPRI og ESSDAI ) er nå tilgjengelig for pasienter og leger, gratis og konfidensielt, på vår plattform som en del av dette EULAR-støttede prosjektet.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo94un91":{"type":"StyledText","id":"dataItem-jpo94un91","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Pasienter : Evaluer aktivitet i ditt Sjögrens syndrom med denne poengsum for pasienter.
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Du kan nå lagre din ESSPRI score f. eks. hver 15. dag, skrive ut resultatet for hver gang, og ta med til din lege ved neste timeavtale.
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\n\nLege : I tillegg vurder aktivitet i Sjögrens syndrom med ESSDAI poengsum
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\n\nDette prosjektet er muliggjort med støtte fra EULAR and the Scientific Council of Sjogren’s group EULAR task force koordinert av Pr SEROR, Kremlin Bicetre Hospital, Paris.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo94ung1":{"type":"LinkableButton","id":"dataItem-jpo94ung1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"ESSDAI Score","link":"#dataItem-jpo94unh"},"dataItem-jpo94unh":{"type":"ExternalLink","id":"dataItem-jpo94unh","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/essdai/en/","target":"_blank"},"dataItem-jpo94unn":{"type":"LinkableButton","id":"dataItem-jpo94unn","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"ESSPRI Score","link":"#dataItem-jpo94unn1"},"dataItem-jpo94unn1":{"type":"ExternalLink","id":"dataItem-jpo94unn1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/esspri/no/","target":"_blank"},"dataItem-jpo94uns":{"type":"StyledText","id":"dataItem-jpo94uns","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Pacientes : Avaliar a atividade da síndrome do seu Sjogren com esta pontuação para os pacientes.
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Agora você pode gravar a sua ESSPRI marcar por exemplo, a cada 15 dias, e os resultados de impressão de cada vez, para mostrar-lhes o seu médico na próxima consulta.
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Médico : Além disso, avaliar a intensidade dos sintomas da síndrome de Sjogren de seu paciente com a ESSDAI pontuação
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Este projecto é realizado com o apoio institucional da EULAR eo Conselho Científico do grupo EULAR força-tarefa de Sjogren coordenado pelo Pr SEROR, Kremlin Bicetre Hospital, Paris.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo9kc6h":{"type":"StyledText","id":"dataItem-jpo9kc6h","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"A síndrome de Sjögren é uma doença auto-imune sistémica caracterizada pelo envolvimento de algumas glândulas lacrimais incluindo salivares e glândulas com um decréscimo de lágrimas e produção de saliva que causam secura. Mas, síndrome de Sjögren pode também ter manifestações sistémicas que pode afectar vários órgãos.
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\n\nMas evoluções e mudanças poderiam ser freqüente no curso da doença e sua avaliação precisa – especialmente através de escores validados – é importante para melhor e individualizado atendimento ao paciente.
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\n\nPara ajudar os pacientes e seus médicos para avaliar a actividade da doença a organização europeia EULAR (European League Against Rheumatism) coordenou a criação de pontuação cientificamente validados que podem ser usados durante o acompanhamento médico regular-up.
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\n\nEstas pontuações ( ESSPRI e ESSDAI ) estão agora disponíveis para pacientes e médicos, de forma gratuita e com sigilo, na nossa plataforma como parte deste projeto apoiado pela EULAR.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo9kc6l":{"type":"StyledText","id":"dataItem-jpo9kc6l","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Sjogrenov sindrom je sistemska avtoimunska bolezen, ki jo v sodelovanju nekaterih žlez, vključno lacrymal in žlez z zmanjšanjem solz in proizvodnjo sline, ki povzročajo suhost. Vendar pa lahko Sjogrenov sindrom tudi sistemske manifestacije, ki lahko vplivajo na različne organe.
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\n\nVendar pa bi točke razvoja in sprememb je pogosto v poteku bolezni in njihovo natančno oceno -especially uporabo potrjenega scores- je pomembno za boljšo in individualno oskrbo bolnikov.
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\n\nZa pomoč bolniki in njihovi zdravniki za oceno aktivnosti bolezni Evropska organizacija EULAR (European League Against Rheumatism) usklajeno oblikovanje znanstveno potrjenih rezultatov, ki se lahko uporabljajo v rednih zdravniških spremljanja.
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\n\nTi rezultati ( ESSPRI i ESSDAI ) so sedaj na voljo za bolnike in zdravnike, brezplačno in zaupno, na naše platforme v okviru tega projekta, ki ga EULAR podpira.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo9kc70":{"type":"StyledText","id":"dataItem-jpo9kc70","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Bolniki : Ocenite dejavnost sindroma vašega Sjögrenov s tem rezultatom za bolnike.
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Zdaj lahko posnamete svoj ESSPRI rezultat na primer vsakih 15 dni, in rezultati tiskanja vsakič, jim pokazati, da zdravnik na naslednji sestanek.
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\n\nZdravniki : Poleg tega, oceniti intenzivnost sindrom simptomov Sjogrenov vašega bolnika z rezultatom ESSDAI
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\n\nTa projekt je realiziran z institucionalno podporo EULAR in znanstvenega sveta skupine EULAR delovne skupine Sjögrenov Pr SEROR, Kremlin Bicetre Hospital, Pariz usklajeno.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpo9kc751":{"type":"LinkableButton","id":"dataItem-jpo9kc751","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"ESSDAI Rezultati","link":"#dataItem-jpo9kc752"},"dataItem-jpo9kc752":{"type":"ExternalLink","id":"dataItem-jpo9kc752","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/essdai/en/","target":"_blank"},"dataItem-jpo9kc7b1":{"type":"LinkableButton","id":"dataItem-jpo9kc7b1","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"label":"ESSPRI Rezultati","link":"#dataItem-jpo9kc7c"},"dataItem-jpo9kc7c":{"type":"ExternalLink","id":"dataItem-jpo9kc7c","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"url":"https://scores.sanoia.com/sjogren/esspri/sl/","target":"_blank"},"dataItem-jpo9kc7i":{"type":"StyledText","id":"dataItem-jpo9kc7i","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Patienter : Utvärdera aktiviteten i Sjögrens syndrom med denna poäng för patienterna.
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Du kan nu spela in ESSPRI poäng t.ex. var 15 dagar, och tryckresultat varje gång, för att visa dem för din läkare vid nästa möte.
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Läkare : Dessutom, utvärdera intensiteten av Sjögrens syndrom symptom på patienten med ESSDAI poäng
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Detta projekt realiseras med institutionellt stöd för EULAR och vetenskapliga råd Sjögrens grupp EULAR arbetsgrupp som samordnas av Pr SEROR, Kremlin bicêtre, Paris.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpoa3qrz":{"type":"StyledText","id":"dataItem-jpoa3qrz","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"Sjögrens syndrom är en systemisk autoimmun sjukdom som kännetecknas av att involvera vissa körtlar inklusive lacrymal och spottkörtlarna med en minskning av tårar och salivproduktionen orsakar torrhet. Men, kan Sjögrens syndrom har också system manifestationer som kan påverka olika organ.
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\n\nMen förändringarna och förändringar kan vara vanliga i sjukdomsförloppet och deras korrekt bedömning – särskilt med hjälp validerade poäng – är viktigt för bättre och individualiserad vård.
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\n\nFör att hjälpa patienter och deras läkare att bedöma sjukdomens aktivitet den europeiska organisationen EULAR (European League Against Rheumatism) koordinerade skapande av vetenskapligt validerade poäng som kan användas under regelbunden medicinsk uppföljning.
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\n\nDessa poäng ( ESSPRI och ESSDAI ) finns nu tillgängliga för patienter och läkare, gratis och med sekretess, på vår plattform som en del av detta projekt som stöds av EULAR.
","stylesMapId":"CK_EDITOR_PARAGRAPH_STYLES","linkList":[]},"dataItem-jpoa3qs31":{"type":"StyledText","id":"dataItem-jpoa3qs31","metaData":{"isPreset":false,"schemaVersion":"1.0","isHidden":false},"text":"1: Seror R, Bowman SJ, Brito-Zeron P, Theander E, Bootsma H, Tzioufas A, Gottenberg JE, Ramos-Casals M, Dörner T, Ravaud P, Vitali C, Mariette X, Asmussen K, Jacobsen S, Bartoloni E, Gerli R, Bijlsma JW, Kruize AA, Bombardieri S, Bookman A, Kallenberg C, Meiners P, Brun JG, Jonsson R, Caporali R, Carsons S, De Vita S, Del Papa N, Devauchelle V, Saraux A, Fauchais AL, Sibilia J, Hachulla E, Illei G, Isenberg D, Jones A, Manoussakis M, Mandl T, Jacobsson L, Demoulins F,Montecucco C, Ng WF, Nishiyama S, Omdal R, Parke A, Praprotnik S, Tomsic M, Price E, Scofield H, L Sivils K, Smolen J, Laqué RS, Steinfeld S, Sutcliffe N, Sumida T, Valesini G, Valim V, Vivino FB, Vollenweider C. EULAR Sjögren’s syndrome disease activity index (ESSDAI): a user guide. RMD Open. 2015 Feb 20;1(1):e000022. doi: 10.1136/rmdopen-2014-000022. eCollection 2015. Review. PubMed PMID: 26509054; PubMed Central PMCID: PMC4613159.
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\n\n2: Seror R, Gottenberg JE, Devauchelle-Pensec V, Dubost JJ, Le Guern V, Hayem G, Fauchais AL, Goeb V, Hachulla E, Hatron PY, Larroche C, Morel J, Pedriger A, Puechal X, Rist S, Saraux A, Sene D, Sibilia J, Vittecoq O, Zarnitsky C, Labetoulle M, Ravaud P, Mariette X. European League Against Rheumatism Sjögren’s Syndrome Disease Activity Index and European League Against Rheumatism Sjögren’s Syndrome Patient-Reported Index: a complete picture of primary Sjögren’s syndrome patients. Arthritis Care Res (Hoboken). 2013 Aug;65(8):1358-64. doi: 10.1002/acr.21991. PubMed PMID: 23436737.
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\n\n3: Seror R, Ravaud P, Bowman SJ, Baron G, Tzioufas A, Theander E, Gottenberg JE, Bootsma H, Mariette X, Vitali C; EULAR Sjögren’s Task Force. EULAR Sjogren’s syndrome disease activity index: development of a consensus systemic disease activity index for primary Sjogren’s syndrome. Ann Rheum Dis. 2010 Jun;69(6):1103-9. doi: 10.1136/ard.2009.110619. Epub 2009 Jun 28. Erratum in: Ann Rheum Dis. 2011 May;70(5):880. PubMed PMID: 19561361; PubMed Central PMCID: PMC2937022.
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\n\n4: Seror R, Meiners P, Baron G, Bootsma H, Bowman SJ, Vitali C, Gottenberg JE, Theander E, Tzioufas A, De Vita S, Ramos-Casals M, Dörner T, Quartuccio L, Ravaud P, Mariette X; EULAR Sjögren Task Force. Development of the ClinESSDAI: a clinical score without biological domain. A tool for biological studies. Ann Rheum Dis. 2016 Jan 25. pii: annrheumdis-2015-208504. doi: 10.1136/annrheumdis-2015-208504. [Epub ahead of print] PubMed PMID: 27150113.
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5: Seror R, Bootsma H, Saraux A, Bowman SJ, Theander E, Brun JG, Baron G, Le Guern V, Devauchelle-Pensec V, Ramos-Casals M, Valim V, Dörner T, Tzioufas A, Gottenberg JE, Solans Laqué R, Mandl T, Hachulla E, Sivils KL, Ng WF, Fauchais AL, Bombardieri S, Priori R, Bartoloni E, Goeb V, Praprotnik S, Sumida T, Nishiyama S, Caporali R, Kruize AA, Vollenweider C, Ravaud P, Meiners P, Brito-Zerón P, Vitali C, Mariette X; EULAR Sjögren’s Task Force. Defining disease activity states and clinically meaningful improvement in primary Sjögren’s syndrome with EULAR primary Sjögren’s syndrome disease activity (ESSDAI) and patient-reported indexes (ESSPRI). Ann Rheum Dis. 2016 Feb;75(2):382-9. doi: 10.1136/annrheumdis-2014-206008. Epub 2014 Dec 5. PubMed PMID: 25480887.
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6: Seror R, Theander E, Brun JG, Ramos-Casals M, Valim V, Dörner T, Bootsma H, Tzioufas A, Solans-Laqué R, Mandl T, Gottenberg JE, Hachulla E, Sivils KL, Ng WF, Fauchais AL, Bombardieri S, Valesini G, Bartoloni E, Saraux A, Tomsic M, Sumida T, Nishiyama S, Caporali R, Kruize AA, Vollenweider C, Ravaud P, Vitali C, Mariette X, Bowman SJ; EULAR Sjögren’s Task Force. Validation of EULAR primary Sjögren’s syndrome disease activity (ESSDAI) and patient indexes (ESSPRI). Ann Rheum Dis. 2015 May;74(5):859-66. doi: 10.1136/annrheumdis-2013-204615. Epub 2014 Jan 17. PubMed PMID: 24442883.
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7: Seror R, Theander E, Bootsma H, Bowman SJ, Tzioufas A, Gottenberg JE, Ramos-Casals M, Dörner T, Ravaud P, Mariette X, Vitali C. Outcome measures for primary Sjögren’s syndrome: a comprehensive review. J Autoimmun. 2014 Jun;51:51-6. doi: 10.1016/j.jaut.2013.12.010. Epub 2014 Jan 8. Review. PubMed PMID: 24411404.
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